Also, my big beef at the moment is that there is only one thing known about Steve's condition. It is caused by areas of swelling in the brain - Encephalitis, I believe they call it. Despite this being the only knowledge they have of his condition, he has not been MRI scanned or CT scanned for a year.
I went to see Steve late today - I'd been doing some work in our bedroom anticipating the installation of hoists etc. I've taken photos of out titchy room to show the multi-disciplinary meeting on Tuesday. They'll know what we're dealing with. This:
I believe The Young Ones would call it "compact and bijou".
I'm very sad to report that I found him lying in a pool of his own wee - he had tipped his bottle. He was also incredibly morose, suffering extremely badly with his PTSD.
That's not even what has made me furious.
He didn't go for his MRI.
I don't know why, I waited over half an hour to find a Nurse, outside his room, pacing the corridor like a mad woman - one Nurse was dealing with multiple buzzers going off. The Nurse that was on today was the Nurse that arranged the trip. There COULD be a genuine reason for this, there was no record in his notes that I could see and I examine them every day.
He started telling me about his P.T.S.D. being incredibly bad last night, but it became quickly apparent that it was the story that Jess and I had been discussing last night, so it couldn't have been. He couldn't tell me if it was based on a real event or a dream, but he was very distressed. The building, you see, reminds him of a building in Sarajevo where he served during the Balkans conflict and witnessed some of the terrible things that have given him the P.T.S.D.
If you've got this far down, would you please do me a favour and "follow" this blog? All you need is a (free) Gmail address and click the follow button. Could you please also share it on your timeline/Twitter?
There's not a lot in the way of email updates at the minute and I've not yet received any phone calls. That's going to change by next week - I guarantee it.
Betty
Have you heard of Thought Field Therapy (TFT) for the PTSD? I use it in my practise (complementary medicine)& I find it amazing for all sorts of trauma. By the way I was diagnosed with a supposedly v seroius condition 25 years ago - in & out of hospitalfor 2 years, been discustingly healthy since we discovered Holistic appriach using healing, acupuncture & nutritional medicine. Theres always a way t improve things. Its "just" a matter of finding the right people. Which hospital is Steve in? Stay strong.
ReplyDeleteJoannah. (www.bodymindalliance.co.uk if you want more info)